A young Kilkenny boy, who suffers from a condition that affects his central nervous system, motor functions and progressively weakens his muscles, is finally starting a drug programme that could change his life. Seven-year-old Isaac Brennan, who lives with Spinal Muscular Atrophy, will start Spinraza treatment at Temple Street Children’s Hospital in Dublin later this […]
By COLIN BARTLEY THE Government has come under attack from Kilkenny TDs over the failure to provide a life-changing drug treatment to a Kilkenny boy. In June, following a lengthy campaign by families and TDs, the Health Service Executive (HSE) announced it would offer the drug Spinraza – used in the treatment of Spinal Muscular […]
By COLIN BARTLEY A KILKENNY family who have tirelessly campaigned for their six-year-old boy to have access to a ‘miracle drug’ said they are “shocked” and “delighted” it is now being made available to them. “You just couldn’t write it. It’s incredible,” beamed Carol Cantwell, mother of Isaac Brennan, the young Kilkenny boy who suffers
THE family of Kilkenny boy Isaac Brennan are celebrating today after the Health Services Executive (HSE) approved the wonder-drug Spinraza as part of it’s public programme. The drug has had a life-changing impact on the lives of sufferers of Spinal Muscle Atrophy (SMA) and is now set to be included in the public health programme. […]